The Beginning

Well let me start from the beginning. Back on May 28, 2009 I was not feeling well at all so I had Jeromy come home early to watch the kids for me so I could go and rest and sleep. About 4:00pm Jeromy was feeding Lacey a bottle. He was then rocking her trying to put her down for a nap when she went completely still and he saw her face turn blue but it went away quickly so he blew it off. Then later on I was feeding her dinner when she kept acting like she was trying to go to sleep in her highchair. She had not taken a very long nap so I thought she was just tired. Then about 6:00pm we were eating dinner when I looked at her and I noticed that her lips were turning blue and she was completely still and would not respond to me. That was when Jeromy told me that he thought he saw her do that earlier. At that point we decided to take her into the ER. When we were at the ER she did the same thing again when we were waiting for them to do an x-ray. That was when they decided to transport her down to Texas Childrens Hospital. Once we were at Texas Childrens ER they did a Cat Scan of her brain and took more blood. While we were waiting on the results the doctor came in to talk to us when she did it again. At this point the doctor told us that they thought she was having seizures and that something had come up on her Cat Scan. It is now about 4:00am on Friday, May 29th. They decided to amit her into the hospital. They gave her some pretty strong medicine to stop the seizures. The next morning they did an MRI to get a better picture. Later that day we spoke to the Neurosurgery and this was when we found out exactly were the tumor is and what kind they think it is. It is in her left temporal lobe and it is called ganglioglioma. He told us that this kind of tumor are normally not cancer and they are slow growing. He wants to do another MRI in about two months and if it has grown then he wants to do surgery then to remove it but if it has not grown then we will still wait. He ideally wants to do the surgery when she is about 1 1/2 to 2 years of age. They kept her in the hospital one more night for monitoring. Lacey did not have another seizure the rest of the time we were there. So we went home on Saturday, May 30th with some different seizure medicine.

Everything was going good until Monday, June 1st when she had two seizures. The neurologist up her medicine dose. We have now increased her dose twice since then to try to get the seizures under control. She is still having the seizures pretty regularly but her neurologist wants to increase her medicine slowly. The side effects to the medicine is sleepness so we want to make sure it is not going to make her out of it. So far the medicine does not seem to be affecting her. She is so active. I can not keep her still. She is crawling around and is now trying to pull herself up on things.


Next week we are going to have another hospital stay. The neurologists want her to be monitored on an EEG machine for 24 hours. They want to make sure that the seizures are being caused by the tumor. We have not scheduled the day yet. I quess that is it for now.